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Published on: November 21, 2013
Progeria: medical aspects, psychosocial perspectives, and intervention guidelines
H Livneh1, R F Antonak, S Maron
1Department of Special and Counselor Education, Portland State University, Oregon, USA.
Abstract:
This article discusses progeria, a rare genetic childhood disorder that invariably results in the individual's death during early adolescence. The article begins by describing the major medical aspects of progeria. This is followed by a discussion of the psychosocial implications of the disorder with particular emphasis upon grief-triggered reactions. The article concludes with an overview of psychosocial intervention guidelines for caregivers who work with families of dying children and adolescents.
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