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Related Experiment Videos

Definitions in paediatric palliative care.

R Sutherland1, J Hearn, D Baum

  • 1Royal Hospital for Sick Children, Bristol.

Health Trends
|December 9, 1992
PubMed
Summary
This summary is machine-generated.

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Clear definitions for pediatric palliative care terms are needed. This study proposes definitions for child, life-threatening/limiting conditions, palliative, respite, and hospice care to aid service development.

Area of Science:

  • Pediatric Palliative Care
  • Medical Terminology
  • Healthcare Policy

Background:

  • Care provision for children with life-threatening and life-limiting illnesses faces challenges due to undefined core terminology.
  • Lack of agreed definitions for terms like 'child', 'life-threatening condition', 'life-limiting condition', 'palliative care', 'respite care', and 'hospice care' hinders effective service development.
  • Current Department of Health pilot initiatives require standardized language for successful implementation.

Purpose of the Study:

  • To propose a set of working definitions for key terms related to pediatric palliative care.
  • To stimulate debate and encourage agreement on essential terminology within the field.
  • To support the Department of Health's initiatives for children with life-threatening and life-limiting illnesses.

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Main Methods:

  • Literature review to identify existing definitions and terminology gaps.
  • Expert consultation and consensus-building discussions.
  • Proposal of standardized definitions for critical terms.

Main Results:

  • Suggested definitions for 'child', 'life-threatening condition', 'life-limiting condition', 'palliative care', 'respite care', and 'hospice care' are presented.
  • The proposed definitions aim to provide a clear and consistent framework for professionals and policymakers.
  • The study facilitates a foundation for discussion and potential agreement on terminology.

Conclusions:

  • Establishing agreed-upon definitions is crucial for advancing care for children with life-threatening and life-limiting illnesses.
  • Standardized terminology will improve communication, service planning, and the effectiveness of support programs.
  • The proposed definitions offer a starting point for achieving consensus in pediatric palliative care.