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Related Experiment Videos

When a chronic illness becomes terminal.

B B Germino1

  • 1University of North Carolina, Chapel Hill, USA.

ANNA Journal
|April 3, 1999
PubMed
Summary
This summary is machine-generated.

Patients with end-stage renal disease (ESRD) face difficult transitions from chronic to terminal illness. Understanding patient coping strategies and the role of nephrology nurses is crucial for support.

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Area of Science:

  • Nephrology
  • Psychology of chronic illness
  • Patient transitions

Background:

  • End-stage renal disease (ESRD) involves complex patient and family transitions.
  • A critical transition occurs when chronic illness progresses to terminal illness, causing significant disruption.

Purpose of the Study:

  • To explore the transition process for patients with ESRD moving towards end-of-life care.
  • To identify patient coping strategies during this critical phase.
  • To highlight the role of nephrology nurses in supporting patients through this transition.

Main Methods:

  • Qualitative exploration of patient experiences during the chronic to terminal illness transition.
  • Analysis of patient-reported coping mechanisms and psychological responses.

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  • Examination of the nurse-patient relationship in managing end-of-life care transitions.

    • Main Results:

    • Patients experience uncertainty and a disruption of self-identity during the transition.
    • Coping strategies include information seeking, normalization, social comparison, and maintaining competence through activities.
    • Trigger events can facilitate the acknowledgment of losses and changes.

    Conclusions:

    • Nephrology nurses are uniquely positioned to support patients and families during ESRD transitions due to established relationships.
    • Understanding patient responses is key for providing effective presence, understanding, and guidance.
    • Interventions should focus on acknowledging losses and facilitating new realities for patients.