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Related Experiment Videos

Handicap questionnaires: what do they assess?

M Cardol1, J W Brandsma, I J de Groot

  • 1Department of Rehabilitation, Academic Medical Center, University of Amsterdam, Netherlands.

Disability and Rehabilitation
|April 17, 1999
PubMed
Summary

Current handicap questionnaires inadequately assess person-perceived handicap. A new generic questionnaire is essential for evaluating rehabilitation needs and outcomes from the individual

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Area of Science:

  • Rehabilitation Medicine
  • Health Outcomes Research
  • Sociology of Health

Background:

  • Growing need to understand the social and societal impact of chronic conditions.
  • Focus on person-perceived handicap, encompassing individual experiences and life roles.
  • Existing assessments often overlook the individual's perspective on their condition.

Purpose of the Study:

  • To review and analyze current handicap questionnaires.
  • To evaluate how these questionnaires assess person-perceived handicap.
  • To identify gaps in existing assessment tools.

Main Methods:

  • Comprehensive literature search of Medline and NPi databases.
  • Inclusion criteria focused on questionnaires addressing handicaps, life roles, environmental influences, and social consequences.

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  • Exclusion of questionnaires solely focused on impairments, disabilities, or quality of life.

    • Main Results:

    • Identified 20 handicap questionnaires.
    • Found a lack of uniform definition and conceptualization of handicap across questionnaires.
    • Fourteen questionnaires assessed society-perceived handicaps, neglecting individual experiences.
    • Six questionnaires partially addressed person-perceived handicaps, but no generic tool was found.

    Conclusions:

    • Current handicap questionnaires are not uniformly defined or comprehensive.
    • A significant gap exists in assessing person-perceived handicap.
    • Development of a generic person-perceived handicap questionnaire is crucial for effective rehabilitation planning and evaluation.