Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Experiment Videos

Genetic privacy: orthodoxy or oxymoron?

A Sommerville1, V English

  • 1British Medical Association, London.

Journal of Medical Ethics
|May 5, 1999
PubMed
Summary

Genetic privacy may be a contradiction, challenging individual autonomy and societal views on responsibility. This impacts how genetic information is shared, affecting personal rights and obligations.

Related Concept Videos

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Guiding Principles for Pharmaceutical Physicians from the Ethical Issues Committee of the Faculty of Pharmaceutical Medicine of the Royal Colleges of Physicians of the UK.

International journal of clinical practice·2006
Same author

Ethics and pharmaceutical medicine -- the full report of the Ethical Issues Committee of the Faculty of Pharmaceutical Medicine of the Royal Colleges of Physicians of the UK.

International journal of clinical practice·2006
Same author

Juggling law, ethics, and intuition: practical answers to awkward questions.

Journal of medical ethics·2003
Same author

Recommendations of the ESGE workshop on Informed Consent for Digestive Endoscopy. First European Symposium on Ethics in Gastroenterology and Digestive Endoscopy, Kos, Greece, June 2003.

Endoscopy·2003
Same author

Presumed consent for transplantation: a dead issue after Alder Hey?

Journal of medical ethics·2003
Same author

Fostering nursing research among nurse clinicians in an Australian area health service.

Journal of continuing education in nursing·2002

Area of Science:

  • Bioethics
  • Genetics
  • Societal Implications

Background:

  • Current legal and ethical frameworks prioritize individual autonomy and patient rights in medicine.
  • This includes duties of candor and frankness from health professionals to patients.
  • However, dilemmas emerge when individuals decline genetic information or refuse to share it with others.

Purpose of the Study:

  • To question the concept of genetic privacy as a potential contradiction in terms.
  • To explore the societal implications of genetic privacy challenges on perceptions of privacy and responsibility.
  • To examine the tension between individual autonomy and the interconnectedness/responsibility to others in the genetic context.

Main Methods:

  • Conceptual analysis of genetic privacy.
  • Ethical discourse on autonomy versus interconnectedness.
  • Exploration of legal and moral obligations regarding genetic information.

Main Results:

  • The concept of "genetic privacy" may indeed be a contradiction.
  • Genetic information inherently involves interconnectedness and responsibility to others, challenging the primacy of personal autonomy.
  • Existing legal and ethical frameworks may be insufficient to address these genetic-specific dilemmas.

Conclusions:

  • The notion of genetic privacy necessitates a re-evaluation of individual autonomy in light of genetic interconnectedness.
  • Societal perceptions of privacy and responsibility must adapt to the unique challenges posed by genetic information.
  • The extent to which individuals' moral obligations regarding genetic information can be enforced requires further ethical and legal consideration.
Keywords:
Analytical ApproachGenetics and ReproductionProfessional Patient Relationship

Related Experiment Videos