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Updated: Oct 21, 2026

Assessment and Communication for People with Disorders of Consciousness
Published on: August 1, 2017
The activated patient: dogma, dream, or desideratum?
Abstract:
In this paper we critically review the active patient concept and place it in a broader social and historical context. We argue that as a reflection of core, Western European values, the active patient concept has not been adequately scrutinized. Very little research has been done that explicitly tests the claims that have been advanced on behalf of this ideal model of the clinician-patient relationship. The research that is available is far from definitive and does not support many of the assertions made by advocates of this approach to patienthood. We urge investigators to substitute theory driven research programs for those motivated by advocacy of a particular ideological stance.
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