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Consumer participation: a personal journey.

J C White

    Canada'S Mental Health
    |May 9, 1989
    PubMed
    Summary

    Consumer participation in mental health organizations is vital. Supporting these individuals, despite personal costs, drives systemic change and improves outcomes through collaboration.

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    Area of Science:

    • Mental Health Services Research
    • Community Psychology
    • Consumer Advocacy

    Background:

    • Consumer participation in mental health organizations is often limited.
    • Consumers possess unique insights into mental health challenges and solutions.
    • Systemic barriers can hinder meaningful consumer involvement.

    Purpose of the Study:

    • To explore the personal journey of a consumer participating in the Canadian Mental Health Association.
    • To identify facilitators and barriers to consumer participation in mental health committees and boards.
    • To advocate for increased acceptance and support for consumer involvement.

    Main Methods:

    • Qualitative personal narrative.
    • Exploration of lived experience within a mental health organization.
    • Analysis of factors influencing participation.

    Main Results:

    • Personal accounts highlight the value of consumer knowledge and passion.
    • Financial and emotional costs are associated with consumer participation.
    • Anger with the system can be a powerful motivator for change.
    • Supportive group environments are crucial for enabling participation.

    Conclusions:

    • Acceptance and support are key to encouraging consumer participation.
    • Partnerships between consumers, professionals, and leaders enhance effectiveness.
    • Addressing the risks and providing support is essential for sustained consumer involvement.

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