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09:17
Using Retinal Imaging to Study Dementia
Published on: November 6, 2017
A state population-based statutory reporting of dementias
Journal (American Medical Record Association)
|December 10, 1988
Summary
State dementia registries are emerging, with medical record professionals crucial for their development and data provision. Their input shapes reporting systems and addresses challenges in registries like New York's.
Area of Science:
- Public Health
- Health Informatics
- Gerontology
Background:
- Multiple states are establishing or considering dementia registries to track disease prevalence and outcomes.
- The development of state-mandated reporting systems for dementia is a growing public health initiative.
- The first Alzheimer's Disease Registry Workgroup Meeting highlighted the importance of stakeholder input.
Purpose of the Study:
- To examine the role of medical record professionals in the development and implementation of dementia registries.
- To identify challenges and solutions encountered by the New York State Alzheimer's Disease and Other Dementias Registry.
- To underscore the ongoing importance of medical record personnel in registry operations and future planning.
Main Methods:
- Review of legislative discussions and workgroup meeting outcomes regarding dementia registries.
- Analysis of the New York State Alzheimer's Disease and Other Dementias Registry's experiences.
- Qualitative assessment of medical record professional involvement through various communication channels and participation.
Main Results:
- Medical record professionals have significantly influenced reporting decisions for dementia registries.
- The New York State registry, a pioneering population-based statutory registry, has overcome unique challenges with professional input.
- Collaboration with medical record personnel has been instrumental in defining registry problems and solutions.
Conclusions:
- Medical record professionals are essential for the successful establishment and operation of dementia registries.
- Their continued involvement is vital for data accuracy and the conceptualization of future registry needs.
- The New York State model demonstrates the value of integrating professional expertise into registry design and function.
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