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Evaluation of a national surveillance unit
M Gazarian1, K Williams, E Elliott
1Australian Paediatric Surveillance Unit, University of Sydney, Australia.
Insights
The Australian Paediatric Surveillance Unit (APSU) largely meets its goals for tracking rare childhood diseases and satisfies Centers for Disease Control and Prevention (CDC) evaluation criteria. Improvements in information dissemination and system design are recommended.
Area of Science:
- Pediatric Public Health
- Epidemiology
- Health Surveillance Systems
Background:
- The Australian Paediatric Surveillance Unit (APSU) is a national system for active surveillance of uncommon childhood conditions.
- Evaluating the effectiveness and adherence to established criteria of surveillance systems is crucial for public health.
Purpose of the Study:
- To assess the Australian Paediatric Surveillance Unit's (APSU) fulfillment of its objectives.
- To determine if the APSU meets the Centers for Disease Control and Prevention (CDC) criteria for evaluating surveillance systems.
Main Methods:
- Anonymous questionnaires were distributed to APSU users, including clinicians, investigators, and public health professionals.
- Individual studies conducted by the APSU were reviewed.
- Data were collected from independent sources to validate system performance.
Main Results:
- Clinician feedback indicated the APSU is useful, with 33% reporting practice changes and 88% finding monthly reporting not burdensome.
- Estimated study sensitivity varied widely (31%-92%), with a positive predictive value over 70% for most notified cases.
- Limited impact on policy was attributed to suboptimal information dissemination; flexibility and timeliness were constrained by system design.
Conclusions:
- The APSU successfully meets most of its objectives and adheres to relevant CDC evaluation criteria.
- Identified areas for improvement include enhancing information dissemination to public health professionals and addressing design limitations in flexibility and timeliness.
- Methodological challenges were noted in applying CDC guidelines to this specific type of surveillance unit.
Aim:
The Australian Paediatric Surveillance Unit (APSU) facilitates national active surveillance of uncommon childhood conditions. This study assessed whether it fulfilled its objectives and satisfied criteria established by the Centers for Disease Control and Prevention (CDC) for evaluating surveillance systems.
Methods:
Anonymous questionnaires were sent to users of the system, individual studies were reviewed, and data were collected from independent sources.
Results:
Seven hundred and sixty six clinicians, 48 investigators, and 15 public health professionals responded to the questionnaires. Clinicians reported that the APSU was useful, 33% saying information provided by the APSU informed or changed their clinical practice. Most (88%) reported that completing monthly report cards was not a burden. Impact on policy development was limited by suboptimal dissemination of information to public health professionals. Flexibility and timeliness were limited by design. Estimated sensitivity of APSU studies ranged from 92% (congenital rubella) to 31% (drowning/near drowning). Positive predictive value of notified cases was over 70% for most studies.
Conclusion:
The APSU fulfils most of its objectives and meets CDC criteria salient to these. Ways in which the APSU could be improved have been identified, as have methodological challenges and limitations in applying CDC guidelines to this type of unit.
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