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Do you CARE? A national register for cleft lip and palate patients
1Department of Orthodontics, Dudley Group of Hospitals NHS Trust, Corbett Hospital, Stourbridge, UK.
Insights
The Craniofacial Anomalies Register--CARE--has operated since 1982, coordinating cleft data. Future plans aim to enhance its role in managing cleft patient information through multidisciplinary collaboration.
Area of Science:
- Craniofacial research
- Medical informatics
- Patient data management
Background:
- The Craniofacial Anomalies Register (CARE) has been operational since 1982.
- Established systems like the Cleft Palate Index preceded CARE.
- Long-term data collection is crucial for understanding craniofacial anomalies.
Purpose of the Study:
- To summarize the development and historical trajectory of the CARE system.
- To outline future plans and strategic directions for CARE.
- To highlight CARE's potential for coordinating cleft data.
Main Methods:
- Review of the historical development of the Craniofacial Anomalies Register.
- Analysis of the current structure and function of the CARE committee.
- Projection of future initiatives and data management strategies.
Main Results:
- CARE has been in operation since 1982, accumulating data on craniofacial anomalies.
- The system involves a multi-disciplinary committee encompassing all relevant specialties.
- CARE is positioned to effectively coordinate patient data.
Conclusions:
- The Craniofacial Anomalies Register is a well-established system for managing cleft data.
- Its multi-disciplinary nature ensures comprehensive patient care coordination.
- Future developments will further optimize data utilization for research and treatment.
Abstract:
The Cleft Palate Index and more recently the Craniofacial Anomalies Register--CARE--have been in operation since 1982. This paper summarises its development and plans for the future. CARE is a multi-disciplinary committee involving all specialties involved in the treatment of this group of patients. It therefore should and can be well placed to coordinate the cleft data arising from these patients.