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Related Experiment Videos

The Perceived Illness Experience Scale (PIE): reliability and validity revisited.

C Eiser1, S Kopel, P Cool

  • 1School of Psychology, University of Exeter, UK.

Child: Care, Health and Development
|June 1, 1999
PubMed
Summary

This study validated the Perceived Illness Experience Scale (PIE) for assessing chronic illness impact in young patients after limb salvage surgery. Results show PIE effectively captures patient perspectives, complementing function measures.

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Area of Science:

  • Orthopedics
  • Psychometrics
  • Pediatric Oncology

Background:

  • Limb salvage surgery is a common treatment for primary bone tumors in pediatric patients.
  • Assessing the full impact of chronic illness requires patient-reported outcomes beyond functional measures.
  • The Perceived Illness Experience Scale (PIE) was developed to capture the patient's perspective on chronic illness.

Purpose of the Study:

  • To psychometrically evaluate the Perceived Illness Experience Scale (PIE) in young patients treated with limb salvage surgery.
  • To assess the construct validity of the PIE by correlating it with well-being and function measures.
  • To determine the utility of mothers as proxy raters for the PIE.

Main Methods:

  • Psychometric evaluation of the PIE using a sample of 34 pediatric patients (mean age 17) post-limb salvage surgery.

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  • Patients completed the PIE, SF-36 (well-being), and function measures.
  • Mothers completed the PIE to assess proxy-rater reliability.

    • Main Results:

    • The PIE demonstrated construct validity through significant correlations with SF-36 scores.
    • Significant correlations were found between patient function and three PIE sub-scales.
    • High agreement between patient and mother PIE ratings indicated mothers can serve as effective proxy raters.

    Conclusions:

    • The PIE is a valid instrument for assessing the perceived impact of chronic illness in pediatric patients undergoing limb salvage surgery.
    • Comprehensive patient assessment should include subjective experiences (PIE) alongside objective functional outcomes.
    • Mothers can provide reliable proxy data using the PIE when patient self-report is not feasible.