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Related Experiment Videos

Becoming a patient with heart failure.

D E Stull1, R Starling, G Haas

  • 1Department of Sociology, The University of Akron, Ohio 44325-1905, USA.

Heart & Lung : the Journal of Critical Care
|July 17, 1999
PubMed
Summary

Becoming a heart failure patient involves a gradual identity shift, encompassing crisis, diagnosis, adjustment, and acceptance. Understanding this process aids in developing supportive interventions for patients and families navigating heart failure.

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Area of Science:

  • Psychosocial aspects of chronic illness
  • Patient identity formation
  • Qualitative health research

Background:

  • Heart failure significantly impacts patients' lives and identities.
  • Existing research often overlooks the early psychosocial experiences of heart failure patients.
  • Understanding patient adjustment is crucial for effective care.

Purpose of the Study:

  • To explore the process of becoming a heart failure patient.
  • To understand how patients adjust to heart failure and its meaning in their lives.
  • To identify key stages in heart failure patient identity formation.

Main Methods:

  • Qualitative study using grounded theory.
  • In-depth interviews with 21 heart failure patients (LVEF ≤35%, NYHA class II-IV).

Related Experiment Videos

  • Interviews conducted in an outpatient cardiology setting; data analyzed using thematic categorization.

    • Main Results:

    • Identity formation in heart failure patients is a gradual process.
    • Five phases identified: crisis, diagnosis, response, acceptance/adjustment, and moving forward.
    • Patients actively construct meaning and adapt their identity throughout these phases.

    Conclusions:

    • Becoming a heart failure patient involves a dynamic process of identity negotiation.
    • Early psychosocial experiences and meaning-making are critical.
    • Findings suggest potential interventions to improve patient and family quality of life.