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Costs, charges, and reimbursements for persons with sickle cell disease

P J Nietert1, M R Abboud, J S Zoller

  • 1Center for Health Care Research, Medical University of South Carolina, Charleston 29425, USA.

Insights

Patients with sickle cell disease (SCD) incur significant health care costs, with a small percentage of patients accounting for a large portion of charges. Geographic distance and painful respiration diagnoses predict higher costs.

Area of Science:

  • Health Economics
  • Hematology
  • Public Health

Background:

  • Sickle cell disease (SCD) is a genetic blood disorder requiring ongoing medical care.
  • Understanding healthcare utilization and costs is crucial for resource allocation and patient management.

Purpose of the Study:

  • To delineate healthcare costs and charges for patients with SCD.
  • To identify key predictors associated with high healthcare utilization among SCD patients.

Main Methods:

  • Utilized International Classification of Diseases, 9th revision, Clinical Modification (ICD-9-CM) codes to identify 947 SCD patients from administrative databases (1996-1997).
  • Collected clinical and administrative data for hospital admissions and ambulatory visits.
  • Employed logistic regression models to ascertain predictors of high healthcare use.

Main Results:

  • SCD patients averaged 0.9 admissions and 8.0 outpatient visits annually.
  • Mean inpatient charges were $7290, with 40% of charges from only 4.2% of patients.
  • Living distantly and diagnosis of painful respiration predicted excessive healthcare charges.

Conclusions:

  • Patients with SCD are high-frequency users of healthcare services.
  • Healthcare costs and charges exhibit disproportionate distribution among SCD patients.
  • Geographic distance and painful respiration diagnosis are significant predictors of elevated hospital charges.
Abstract

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