Teaching parents advanced clinical skills

Area of Science:

• Pediatric Hematology
• Home Healthcare Management
• Medical Device Technology

Background:

• Advances in managing inherited chronic disorders like hemophilia have significantly improved patient quality of life.
• Home-based intravenous treatment is increasingly expected of parents for conditions requiring frequent administration.
• Implantable venous access devices (IVADs) facilitate reliable venous access for young children requiring home care.

Purpose of the Study:

• To address the complexity of home-based intravenous treatment for children with hemophilia.
• To introduce a standardized teaching package for parents administering IVADs.
• To provide a framework for instruction, assessment, and emotional support for families managing home care.

Main Methods:

• Development and implementation of a comprehensive parental teaching package for IVAD management.
• The package includes theoretical instruction, practical training, and ongoing in-home assessments.
• Documentation of training processes to standardize information and ensure professional accountability for nurses.

Main Results:

• The teaching package provides a structured approach to equipping parents with necessary skills for home IVAD care.
• It ensures consistent information delivery and offers planned emotional support for children and parents.
• The package standardizes nursing practice and provides reassurance regarding professional obligations.

Conclusions:

• The developed teaching package effectively supports parents in managing implantable venous access devices for home treatment.
• This initiative enhances the quality of life for children with hemophilia by enabling complex home care.
• The model is potentially applicable to other chronic conditions requiring intravenous home care.