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Esophageal dysmotility in brothers with an FG-like syndrome

R L Smith1, M J Edwards, E Notaras

  • 1Department of Pediatrics, John Hunter Hospital, New Lambton Heights, Australia.

Insights

This study identifies a potential X-linked syndrome resembling FG syndrome, characterized by developmental delay and gastrointestinal issues like nutcracker esophagus. Calcium channel blockers effectively treated symptoms and improved esophageal motility.

Area of Science:

  • Genetics
  • Pediatrics
  • Gastroenterology

Background:

  • FG syndrome is an X-linked disorder associated with congenital anomalies, intellectual disability, and potential gastrointestinal dysmotility.
  • Gastrointestinal issues in FG syndrome can include gastro-esophageal reflux, feeding difficulties, and severe constipation.
  • Esophageal dysmotility, such as nutcracker esophagus, may be a presenting symptom in infants with FG syndrome.

Observation:

  • Four brothers presented with developmental delay, minor anomalies, and symptoms suggestive of gastrointestinal dysmotility.
  • The index case exhibited screaming episodes, mild gastro-esophageal reflux, and severe constipation at one month of age.
  • Esophageal manometry revealed findings consistent with nutcracker esophagus in the index case.

Findings:

  • Symptomatic and manometric improvement was observed following treatment with oral calcium channel blockers.
  • Two elder brothers showed similar manometric findings but did not require treatment.
  • A fourth brother's esophageal manometry normalized after infantile symptoms.

Implications:

  • These cases suggest an X-linked syndrome with FG syndrome manifestations, responsive to calcium channel blockers.
  • Early suspicion of esophageal dysmotility, particularly nutcracker esophagus, is crucial in infants with FG syndrome and screaming attacks.
  • Calcium channel blockers may offer a therapeutic option for managing esophageal dysmotility in this specific X-linked condition.

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