Family adaptation to a child's transplant: pretransplant phase

The purpose of this study was to explore the relationship between family stress, family coping, social support, perception of stress, and family adaptation from the mother's perspective during the pretransplant period in the context of the Double ABC-X Model of Family Adaptation. The process of seeking a transplant for a child is very stressful, and before interventions can be developed, clinicians need to understand how aspects of family life are affected. Twenty-nine mothers whose children were being evaluated for a liver transplant constituted the sample for this exploratory study. Higher family strains, fewer coping skills, and higher perception of stress were related to more unhealthy family adaptation during the pre-transplant phase. Data point to the need for close evaluation not only for the child's needs but for the family's needs as the family begins the process of seeking a transplant for the child.