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[Evaluating radiotherapy patients' need for information: a study using a patient information booklet]
V Bonnet1, C Couvreur, P Demachy
1Département d'oncologie-radiothérapie, centre hospitalier Lyon-Sud, Pierre-Bénite, France.
Summary
Patient information booklets are crucial for radiotherapy patients, with 97% finding them necessary. Patients desire open communication about their cancer and treatment to feel empowered and involved in their care.
Area of Science:
- Oncology
- Medical Education
- Patient Information Dissemination
Context:
- A patient information booklet on radiotherapy was developed by the French Radiotherapy-Oncology Society (SFRO) and the National Trade of Radiotherapists-Oncologists (SNRO) in 1999.
- This study evaluates the effectiveness and relevance of this booklet one year post-publication.
Purpose:
- To assess the pertinence and impact of a patient information booklet on radiotherapy.
- To understand patient needs regarding information about their disease, treatment, and side effects.
Summary:
- 162 patients from eight radiotherapy centers were surveyed at treatment initiation.
- 97% of patients found the information booklet essential, with the SFRO booklet addressing most concerns.
- Patients reported reassurance from acquiring technical and practical knowledge about their treatment.
Impact:
- 87% of patients requested direct communication about their illness, emphasizing the need to use the word 'cancer'.
- 72% desired more information on cancer, treatment options, and quality of life for psychological preparation.
- Patients seek to be active partners in their treatment and recovery, rejecting passive roles.