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Spiritual issues associated with traumatic-onset disability.

M A McColl1, J Bickenbach, J Johnston

  • 1School of Rehabilitation Therapy, Queens University, Kingston, Canada.

Disability and Rehabilitation
|September 27, 2000
PubMed
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Spirituality in disability is explored through five themes and three relationships, forming a framework for understanding spiritual issues. Brain injury survivors emphasized family and trust more than spinal cord injury survivors.

Area of Science:

  • Qualitative research
  • Disability studies
  • Psychology of religion

Background:

  • Spirituality is a crucial aspect of human experience, particularly during life transitions.
  • Understanding the spiritual needs of individuals with sudden-onset disabilities is essential for holistic care.
  • Existing theories on spirituality often stem from palliative care and aging populations, necessitating context-specific research for disability.

Purpose of the Study:

  • To qualitatively explore concepts of spirituality among individuals with sudden-onset disabilities.
  • To understand the lived experience of spiritual issues at the onset of disability.
  • To compare spiritual perceptions between individuals with brain injury and spinal cord injury.

Main Methods:

  • A qualitative approach was employed to gain in-depth understanding.

Related Experiment Videos

  • The study involved a sample of 16 individuals with either spinal cord injury or brain injury.
  • A cross-sectional time frame was used to capture experiences at disability onset.

    • Main Results:

    • Five emergent themes (awareness, closeness, trust, purpose, vulnerability) and three relational dimensions (intrapersonal, interpersonal, transpersonal) were identified.
    • These eight dimensions form a matrix framework for analyzing spirituality in disability.
    • Individuals with brain injuries highlighted family importance and trust needs more than those with spinal cord injuries, particularly due to memory deficits.

    Conclusions:

    • This study offers an empirical approach to developing theory on spirituality and disability.
    • A theoretical model is proposed to aid clinicians, educators, and researchers in understanding spirituality within the context of disability.
    • The findings contribute to a nuanced understanding of spiritual well-being following sudden-onset disabilities.