Patients with implantable cardioverter-defibrillators and their conceptions of the life situation: a qualitative

B Fridlund1, E C Lindgren, A Ivarsson

  • 1Centre for Health Promotion Research, Halmstad University, Sweden. Bengt.Fridlund@ihv.hh.se

Insights

Patients with implantable cardioverter-defibrillators (ICDs) experience a mix of safety and intrusion. This study explored their life situation, highlighting the need for better support and education for ICD patients and their families.

Area of Science:

  • Cardiology
  • Psychology
  • Patient Experience Research

Background:

  • Implantable cardioverter-defibrillators (ICDs) are crucial for managing life-threatening ventricular dysrhythmias.
  • Limited qualitative research exists on ICD patients' lived experiences, particularly outside the USA.

Purpose of the Study:

  • To explore and describe the life situation of patients with an ICD in south-western Sweden.
  • To understand patients' holistic conceptions of living with an ICD device.

Main Methods:

  • A qualitative, phenomenographically inspired analysis.
  • A strategic sample of 15 patients living with an ICD device.

Main Results:

  • Six emergent categories: feeling safe, gratitude, sense of being, social network, future belief, and gained awareness.
  • Identified both beneficial and intrusive aspects of living with an ICD.
  • Findings highlight the subjective patient experience of ICD therapy.

Conclusions:

  • The study underscores the complex psychosocial impact of ICDs on patients' lives.
  • Emphasizes the necessity for enhanced support systems for patients and families.
  • Recommends further education for healthcare professionals involved in ICD patient care.