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Service needs of parents with motor or multiply disabled children in Dutch therapeutic toddler classes
A H Hendriks1, J M De Moor, J H Oud
1Department of Special Education, University of Nijmegen, The Netherlands. A.Hendriks@ped.kun.nl
Insights
Parents of disabled toddlers in therapeutic classes need more information and support. After 10 months, many service needs, particularly for information on disability and parenting, remained unmet.
Area of Science:
- Pediatric Rehabilitation
- Developmental Disabilities
- Family Support Services
Background:
- Therapeutic toddler classes provide crucial early intervention for children with motor or multiple disabilities.
- Assessing and addressing parental service needs is vital for successful child development and family well-being.
- Understanding the determinants of parental needs and the impact of interventions over time is essential for service improvement.
Purpose of the Study:
- To identify the service needs of parents at the commencement of therapeutic toddler class treatment.
- To analyze the factors influencing these parental needs.
- To evaluate the services received by parents after a 10-month treatment period.
Main Methods:
- A study involving 84 parents of children in therapeutic toddler classes across 16 Dutch rehabilitation centers.
- A 33-item questionnaire was used to assess parental needs and received services, alongside measures of child, parent, and family characteristics.
- Factor analysis was employed to identify distinct parental need subscales.
Main Results:
- Five distinct parental need subscales were identified, with needs for information about the child's disability and therapy being most prominent.
- Parental needs varied significantly between individuals, with no major differences noted between mothers and fathers.
- Family social isolation emerged as a significant determinant of parental needs, and a substantial number of needs remained unmet after 10 months.
Conclusions:
- Regular, systematic assessment of both parental needs and service provision is recommended for therapeutic toddler programs.
- Healthcare professionals should prioritize delivering information to parents regarding their child's condition, therapeutic interventions, available community resources, and parenting strategies.
- Addressing unmet needs, particularly information gaps, is crucial for enhancing family functioning and support within early intervention services.
Objective:
To determine parents' service needs at the start of therapeutic toddler class treatment, to analyse determinants and to investigate received help after a period of 10 months.
Subjects:
Parents with motor or multiply disabled children in therapeutic toddler classes.
Setting:
Sixteen out of 17 Dutch rehabilitation centres.
Design:
A sample of 84 parents, stratified according to toddler class size.
Main Outcome Measures:
A questionnaire of 33 items, divided into five categories, was designed to assess parents' needs and to evaluate the amount of received help. Several measures were used to assess child, parent and family characteristics.
Results:
Based on factor analysis, five need subscales were distinguished which only partially corresponded to the initial categories. The initial category concerning needs for help in family functioning did not come out as a factor. Needs expressed most frequently belonged to the three subscales of needs for information concerning the child. The average level of needs generally did not differ for mothers and fathers across the subscales. However, we found large variation in needs for both mothers and fathers on each subscale. The most important, positively correlated determinant of parents' needs was social isolation of the family. After 10 months a considerable level of unmet needs was found.
Conclusions:
A systematic and periodic assessment of individual needs of parents as well as the services offered is recommended. Professionals of the therapeutic toddler classes should especially focus on providing parents with information on their child's disability and therapy, community services and parenting.
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