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Published on: February 17, 2011
Gaps in end-of-life care
L L Emanuel1, C F von Gunten, F D Ferris
1Education for Physicians on End-of Life Care, Interdisciplinary Program for Professionalism and Human Rights, Northwestern University Medical School,750 N Lake Shore Dr, Suite 601, Chicago, IL 60611. info@epec.net
Many Americans die in distress, contrasting with their wishes for a comfortable end-of-life experience. This highlights significant barriers to quality end-of-life care.
Area of Science:
- Gerontology
- Palliative Care
- Medical Ethics
Background:
- Over one million Americans die annually from various causes.
- End-of-life experiences vary significantly, with some individuals experiencing comfort and others considerable suffering.
Purpose of the Study:
- To contrast the actual experiences of dying Americans with their stated preferences for end-of-life care.
- To identify barriers hindering the provision of high-quality end-of-life care.
Main Methods:
- Comparative analysis of actual versus desired end-of-life experiences.
- Identification and discussion of obstacles to optimal palliative care.
Main Results:
- A significant disparity exists between how Americans die and how they wish to die.
- Barriers to high-quality end-of-life care are prevalent and impact patient outcomes.
Conclusions:
- Addressing the gap between desired and actual end-of-life experiences is crucial.
- Overcoming identified barriers is essential for improving palliative care and patient well-being.
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