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Related Experiment Videos

Gaps in end-of-life care.

L L Emanuel1, C F von Gunten, F D Ferris

  • 1Education for Physicians on End-of Life Care, Interdisciplinary Program for Professionalism and Human Rights, Northwestern University Medical School,750 N Lake Shore Dr, Suite 601, Chicago, IL 60611. info@epec.net

Archives of Family Medicine
|December 15, 2000
PubMed
Summary
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Many Americans die in distress, contrasting with their wishes for a comfortable end-of-life experience. This highlights significant barriers to quality end-of-life care.

Area of Science:

  • Gerontology
  • Palliative Care
  • Medical Ethics

Background:

  • Over one million Americans die annually from various causes.
  • End-of-life experiences vary significantly, with some individuals experiencing comfort and others considerable suffering.

Purpose of the Study:

  • To contrast the actual experiences of dying Americans with their stated preferences for end-of-life care.
  • To identify barriers hindering the provision of high-quality end-of-life care.

Main Methods:

  • Comparative analysis of actual versus desired end-of-life experiences.
  • Identification and discussion of obstacles to optimal palliative care.

Main Results:

  • A significant disparity exists between how Americans die and how they wish to die.
Keywords:
Death and EuthanasiaEducation for Physicians on End-of-Life Care (EPEC) Project

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  • Barriers to high-quality end-of-life care are prevalent and impact patient outcomes.

    • Conclusions:

    • Addressing the gap between desired and actual end-of-life experiences is crucial.
    • Overcoming identified barriers is essential for improving palliative care and patient well-being.