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Updated: Jun 25, 2026

A Strategy to Identify de Novo Mutations in Common Disorders such as Autism and Schizophrenia
Published on: June 15, 2011
What genetic advances might mean for the consumer in mental illness
1Neuroscience Institute of Schizophrenia and Allied Disorders, Darlinghust, New South Wales, Australia. nisad@garvan.unsw.edu.au
Objective:
Increased research efforts into screening young people at risk of schizophrenia is anticipated. The aim of the present paper is to consider the ethical concerns raised by this research from a consumer's perspective.
Method:
Insights into relevant ethical concerns obtained from personal experiences of psychotic illness are described.
Results:
A range of salient ethical issues were identified that need to be addressed in research proposals regarding the screening of people for schizophrenia risk factors.
Conclusions:
The importance of research into the development of screening procedures for schizophrenia risk factors suggests that the ethical issues identified need urgent attention. Consumer input is essential in this endeavour.
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