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Gaining access to potential research participants
1University Department of Ophthalmology, University of Manchester.
Professional Nurse (London, England)
|December 29, 2000
Summary
Accessing informal carers for cancer research was challenging for nurses lacking autonomy. Many nurses required physician approval, hindering participant recruitment and research objectives.
Area of Science:
- Palliative Care
- Health Services Research
- Nursing Practice
Background:
- Informal carers provide crucial support to terminally ill cancer patients.
- Research participation is vital for understanding and improving palliative care.
- Primary care nurses play a key role in patient and carer support.
Purpose of the Study:
- To explore challenges in recruiting informal carers of terminally ill cancer patients.
- To investigate the role of primary care nurses in facilitating research access.
- To identify barriers to autonomous professional functioning among nurses in research contexts.
Main Methods:
- Qualitative study involving a researcher's experience.
- Interactions with primary care nurses regarding participant recruitment.
- Analysis of nurse-reported barriers to facilitating research access.
Main Results:
- Researchers faced significant difficulties recruiting participants through primary care nurses.
- Nurses often required physician permission to facilitate access to informal carers.
- Lack of perceived professional autonomy among nurses impeded research participation.
Conclusions:
- Barriers to professional autonomy in nursing can hinder vital research endeavors.
- Facilitating nurse autonomy may improve access to participants in palliative care research.
- Addressing systemic issues is necessary to support research involving informal carers.