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[The ACHEI Program: Chagas' disease awareness through comprehensive education in the municipality of Maringá,
S M de Araújo1, M H Andó, D J Cassarotti
1Departamento de Análises Clínicas, Universidade Estadual de Maringá, Av. Colombo 5790, 87020-900 Maringá, PR, Brazil. marqueslima@wnet.com.br
Insights
This study highlights the challenges faced by Chagas disease patients, including treatment side effects and psychosocial issues. A new educational program, ACHEI, was developed to provide comprehensive support and improve quality of life for those with Trypanosoma cruzi infection.
Area of Science:
- Tropical Medicine
- Infectious Diseases
- Public Health
Context:
- Analyzed 131 patients with Chagas disease from endemic regions.
- Patients learned of infection via symptoms (58%) or blood donation (29.4%).
- High incidence of side effects (45.2%) reported with benznidazole treatment for Trypanosoma cruzi.
Purpose:
- To develop and implement the ACHEI program (Chagas' Disease Awareness through Comprehensive Education).
- To provide multiprofessional and interdisciplinary support for Chagas disease patients.
- To address the psycho-social needs and improve the quality of life for individuals affected by Chagas disease.
Summary:
- The ACHEI program features monthly meetings with two components: informational sessions on disease transmission, symptoms, and treatment, and psycho-social assistance.
- Discussions cover self-esteem, personal responsibility, and patient concerns about post-diagnosis quality of life, fear, anxiety, stigma, and social relationships.
- The program facilitates patient reflection and coping strategies for managing Chagas disease.
Impact:
- Aimed to enhance patient understanding and management of Chagas disease.
- Provided a supportive environment for patients to share experiences and concerns.
- Promoted better adaptation and well-being for individuals living with Chagas disease.
Abstract:
This study analyzes 131 chagasic patients from different endemic areas that came to the Chagas' disease laboratory at the Maringa State University. The subjects discovered they were infected principally because they presented symptoms (58%) or donated blood (29.4%). During etiologic treatment for Trypanosoma cruzi, 45.2% of benznidazole users complained of side effects. Based on these data, the ACHEI program (Chagas' Disease Awareness through Comprehensive Education) was developed, which is a multiprofessional/interdisciplinary extension project. Monthly meetings are held that are divided into two parts: The first half of the meetings provide specific information, including the distribution of brochures explaining Chagas' disease transmission, symptoms and treatment. The second half of the meetings focuses on psycho-social assistance and includes topics such as self-esteem and personal responsibility. The meetings provide an environment for chagasic patients to share their concerns regarding post-diagnosis quality of life, fear, anxiety, stigma and family and social group relationships. In short, the meetings offer an opportunity for patients to reflect on their situation and to discover ways to deal with their disease.
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