Cleft lip and/or palate in the west of Ireland, 1980-1996

Area of Science:

• Pediatric Epidemiology
• Craniofacial Anomalies
• Public Health

Background:

• Cleft lip and/or palate (CL/P) are common congenital anomalies requiring specialized care.
• Understanding the epidemiology of CL/P is crucial for public health planning and resource allocation.
• Previous epidemiological data for CL/P in Ireland during this period is limited.

Purpose of the Study:

• To identify and investigate the incidence and characteristics of children born with CL/P in the Western Health Board region of Ireland between 1980 and 1996.
• To analyze epidemiological trends including cleft type, gender, family history, and geographical distribution.
• To provide evidence for improving data collection and care coordination for CL/P.

Main Methods:

• Retrospective cohort study identifying children with CL/P.
• Data collection over a 17-year period (1980-1996).
• Analysis of incidence rates, epidemiological factors, and comparison with international trends.

Main Results:

• One hundred and six children with CL/P were identified.
• The incidence rate was 1.14 per thousand live births (1:871).
• Epidemiological findings aligned with established international patterns for CL/P.

Conclusions:

• The incidence of CL/P in the studied region aligns with global trends.
• A national register for CL/P with mandatory reporting is recommended for Ireland.
• Improved data consistency and care coordination are potential benefits of a national register.