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Discontinuing treatment in children with chronic, critical illnesses
M M Mahon1, J A Deatrick, H J McKnight
1Hospital of the University of Pennsylvania, 3400 Spruce St, Philadelphia, PA 19104, USA.
Insights
Optimal treatment decisions for critically ill children differ from adults, especially with technology dependence. This article explores ethical considerations, including futility and discontinuing treatment, for pediatric nurse practitioners.
Area of Science:
- Pediatric Critical Care Medicine
- Bioethics
- Nursing Practice
Background:
- Technological advancements have led to an increase in chronically, critically ill children who are dependent on technology.
- Ethical decision-making frameworks for adult and neonatal populations are well-established, but less so for older children.
- Understanding the nuances of technology application and withdrawal in pediatric care is crucial.
Observation:
- Critically ill children present unique ethical challenges in treatment decisions compared to adults.
- The increasing reliance on technology in pediatric intensive care necessitates careful consideration of its use and discontinuation.
- Factors such as the child's age, pain management, and decision-making standards are critical in pediatric ethical dilemmas.
Findings:
- Ethical decision-making for critically ill children requires specific considerations beyond adult and neonatal models.
- Key factors influencing treatment decisions include the standards of care, the identity of decision-makers, the child's age, and pain management strategies.
- Concepts of medical futility, discontinuing aggressive treatments, and balancing benefits versus burdens are integral to ethical pediatric care.
Implications:
- This analysis provides essential insights for nurse practitioners in managing ethical complexities in pediatric critical care.
- The findings support the development of evidence-based guidelines for technology use and withdrawal in chronically ill children.
- Informing practice through ethical case studies can enhance the quality of care for technology-dependent pediatric patients.
Abstract:
Decisions about optimal treatment for critically ill children are qualitatively different from those related to adults. Technological advances over the past several decades have resulted in myriad treatment options that leave many children chronically, critically ill. These children are often technology dependent. With new technologies and new patient populations comes the responsibility to understand how, when, and why these technologies are applied and when technology should not be used or should be withdrawn. Much has been written about ethical decision making in the care of chronically, critically ill adults and newborns. In this article, relevant factors about the care of children older than neonates are described: standards, decision makers, age of the child, and pain management. A case study is used as a mechanism to explore these issues. Dimensions of futility, discontinuing aggressive treatment, and a consideration of benefits and burdens are integrated throughout the discussion to inform nurse practitioner practice.
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