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[Pediatric follow-up network in the south Ile-de-France]
1Service de Pédiatrie et Réanimation Néonatales, Hôpital Antoine-Béclère, 157, rue de la Porte-de-Trivaux, 92141 Clamart.
Insights
Regional perinatal care improves survival for very preterm infants. However, neurodevelopmental follow-up for these children remains unorganized, necessitating a dedicated pediatric network for structured care and data collection.
Area of Science:
- Neonatal care
- Pediatric neurology
- Public health systems
Background:
- Regional perinatal networks have improved very preterm infant survival rates.
- Current follow-up care for high-risk neurodevelopmental outcomes in surviving infants is inadequately organized.
- A gap exists in structured, long-term care for vulnerable infants post-NICU discharge.
Purpose of the Study:
- To establish a pediatric network for organized local follow-up and care of infants at risk of neurodevelopmental impairment.
- To create a system for collecting standardized follow-up data on high-risk infants.
- To ensure continuity of care from perinatal networks to pediatric follow-up services.
Main Methods:
- Establishment of a pediatric network linked to a regional perinatal network.
- Implementation of two core missions: local care organization and data collection.
- Annual standardized data collection forms covering growth, health, neurodevelopment, and psychosocial integration.
Main Results:
- A structured pediatric network was created to address the care gap for high-risk infants.
- Standardized follow-up protocols and data collection tools were implemented.
- The network facilitates organized local care and data gathering for neurodevelopmental outcomes.
Conclusions:
- The established pediatric network provides essential organized follow-up for infants at risk of neurodevelopmental impairment.
- Systematic data collection will inform future care strategies and improve outcomes for high-risk children.
- Continuity of care between perinatal and pediatric services is crucial for optimizing infant neurodevelopmental trajectories.
Abstract:
Regional organization of perinatal care, with maternal tranfers, has largely contributed to the increasing survival rate of very preterm infants. Nevertheless, follow-up and care the of these surviving children at risk of neurodevelopmental impairment are insufficiently organized. For this reason, a pediatric network of care and follow-up has been set up in continuity of a regional perinatal network ("réseau périnatal et réseau pédiatrique du sud-ouest de l'Ile de France"). Two missions are devoted to this network: organize local follow-up and care of infants at risk of abnormal outcome and collect follow-up data with specific forms. One form per year of age is to be filled with Items concerning growth, health, cognitive and motor development, family and society integration, quality of life.