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Solidarity and equity: new ethical frameworks for genetic databases.

R Chadwick1, K Berg

  • 1Institute for Environmental Philosophy and Public Policy, Lancaster University, Bailrigg, Lancaster, Lancashire LA1 4SH, UK. r.chadwick@lancaster.ac.uk

Nature Reviews. Genetics
|April 3, 2001
PubMed
Summary

Ethical frameworks for genetic databases face scrutiny. Strengthening informed consent and confidentiality, alongside promoting solidarity and benefit sharing, are key considerations for responsible research.

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Area of Science:

  • Bioethics
  • Genetics
  • Public Health

Background:

  • Genetic database initiatives present complex ethical challenges.
  • Debates focus on balancing potential harms and benefits.
  • Existing ethical frameworks may require reevaluation.

Approach:

  • Examining the adequacy of current ethical guidelines.
  • Proposing enhancements to informed consent and confidentiality protocols.
  • Exploring alternative ethical frameworks centered on solidarity and benefit sharing.

Key Points:

  • Genetic databases raise significant ethical questions.
  • Informed consent and confidentiality are crucial.
  • Solidarity and equitable benefit sharing are emerging ethical considerations.
Keywords:
Biomedical and Behavioral ResearchGenetics and Reproduction

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Conclusions:

  • Existing ethical frameworks may be insufficient for genetic databases.
  • A dual approach of strengthening current practices and adopting new ethical principles is needed.
  • Promoting research participation for the common good is vital.