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Related Experiment Videos

Involving consumers in a needs-led research programme: a pilot project.

S Oliver1, R Milne, J Bradburn

  • 1Social Science Research Unit, University of London, Institute of Education, London, UK. s.oliver@ioe.ac.uk

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
|April 5, 2001
PubMed
Summary

Consumer involvement in health research programs enhances topic identification and prioritization. Despite challenges like cultural divides, active consumer participation yields unique contributions and improves research processes.

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Area of Science:

  • Health Services Research
  • Patient and Public Involvement in Research

Background:

  • Consumer involvement is crucial for needs-led health research programs.
  • Effective methods for integrating consumer perspectives are essential for research relevance and impact.

Purpose of the Study:

  • To detail the methodologies employed for integrating consumers into a health research program driven by identified needs.
  • To examine the facilitators, barriers, and objectives associated with consumer engagement in health research.

Main Methods:

  • An action research pilot study involving consumers at all stages of the Health Technology Assessment (HTA) Programme.
  • Utilized diverse consumer groups, explored consumer literature, and provided training and support.
  • Employed a reflective approach including interviews, document analysis, and multidisciplinary discussions.

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Main Results:

  • Face-to-face consumer group discussions were more effective for topic generation than literature review.
  • Consumers actively participated in refining topics and commenting on research plans and reports.
  • Cultural divides and skill development needs were identified as challenges, necessitating support and training for all involved.

Conclusions:

  • Consumer input provided unique contributions and highlighted areas for process improvement in the HTA Programme.
  • Successful consumer involvement was facilitated by staff openness to innovation and team learning.
  • Sustaining consumer involvement requires ongoing effort despite recruitment and capacity not being insurmountable barriers.