Paediatric palliative care: a lack of research-based evidence

Area of Science:

• Palliative Care
• Paediatric Healthcare
• Clinical Research

Background:

• Providing optimal care for children and families in paediatric palliative care is crucial.
• Limited research exists to guide practitioners in evaluating and improving their current practices.
• Concerns regarding research ethics in this sensitive area must be balanced with the demand for evidence-based healthcare standards.

Purpose of the Study:

• To review the available literature on paediatric palliative care.
• To identify gaps in research and highlight the need for evidence-based practice.
• To inform practitioners and contribute to the development of clear standards and guidelines.

Main Methods:

• A comprehensive literature review was conducted.
• Students undertaking a degree module in paediatric palliative care identified and reviewed existing research.
• The review focused on identifying the extent of available literature and research.

Main Results:

• A significant lack of published literature and research in paediatric palliative care was identified.
• Existing studies do not adequately support practitioners in questioning or improving current practices.
• The review highlights a disparity between the demand for evidence-based care and the available research.

Conclusions:

• There is a critical need for increased research in paediatric palliative care to establish evidence-based guidelines.
• Further research is essential to ensure that care provided meets modern healthcare standards and avoids outdated practices.
• Addressing the research deficit will enhance the quality of care for children and families receiving palliative support.