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Related Experiment Videos

How do we facilitate carers' involvement in decision making?

E Walker1, B J Dewar

  • 1Department of Health and Nursing, Queen Margaret University College, Edinburgh, UK. b.dewar@qmuc.ac.uk

Journal of Advanced Nursing
|May 1, 2001
PubMed
Summary

Informal carers reported dissatisfaction with their involvement in healthcare decisions. Addressing hospital systems and staff relationships is crucial for improving patient and carer engagement in health services.

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Area of Science:

  • Healthcare Policy and Practice
  • Patient and Carer Engagement
  • Qualitative Research Methods

Background:

  • Government policies advocate for increased service user involvement in healthcare decision-making.
  • Despite policy recommendations, a significant gap persists between policy and actual practice regarding user involvement.
  • Carers' organizations consistently report challenges in achieving meaningful involvement in healthcare.

Purpose of the Study:

  • To investigate user involvement within a specific healthcare setting.
  • To identify opportunities for enhancing carer involvement in healthcare.
  • To propose practical strategies for improving carer engagement in health services.

Main Methods:

  • A qualitative case study design was employed.

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  • Interviews were conducted with informal carers (n=20) and multidisciplinary team members (n=29).
  • Non-participant observation of ward routines and meetings, alongside constant comparative analysis of interview and observational data.

    • Main Results:

    • Carers identified four key markers of satisfactory involvement: information sharing, inclusion in decision-making, accessible contact persons, and responsive services.
    • A majority of informal carers expressed dissatisfaction with their current level of involvement.
    • Barriers to effective carer involvement were identified within hospital systems, processes, and the nurse-carer relationship.

    Conclusions:

    • Improving carer involvement requires addressing systemic and relational barriers within healthcare settings.
    • Healthcare practitioners must actively identify and challenge these barriers to facilitate meaningful engagement.
    • Enhancing carer involvement is essential for aligning healthcare practice with policy objectives and improving service user experience.