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Resiliency and success in adults with Moebius syndrome
1Communication Disorders and Sciences, San Jose State University, California 95192-0079, USA.
Objective:
This study asked selected mature individuals with Moebius syndrome to discuss the sources of strength and resiliency that allowed them to achieve professional and personal success.
Design:
Adults with Moebius syndrome were selected in a nonrandom manner based primarily on their affiliation with the Moebius Syndrome Foundation. Following a letter from the author describing the objective, the subjects were interviewed by telephone and were encouraged to respond at length.
Participants:
Eighteen adults (aged 29 to 70 years) responded. All were or had been gainfully employed in a variety of professional or vocational positions.
Results:
The respondents reported the following as major sources of resiliency and success: family support, faith, humor, sense of self, special skills, determination, and networking.
Conclusions:
The recognition and reinforcement of strengths and resiliences in younger patients may help maximize their professional and personal success as adults.