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Related Experiment Videos

Parent advisory groups in pediatric practices: parents' and professionals' perceptions.

M H Young1, J M McMenamy, E C Perrin

  • 1UMass Memorial Medical Center, Department of Pediatrics, 55 Lake Ave N, Worcester, MA 01655, USA.

Archives of Pediatrics & Adolescent Medicine
|July 14, 2001
PubMed
Summary

Parent advisory groups (PAGs) enhance support and collaboration for families with children needing chronic care. Both parents and professionals found PAGs beneficial, fostering communication and increasing efficacy in care.

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Area of Science:

  • Pediatric Healthcare
  • Community Health
  • Family Support Systems

Background:

  • Parent advisory groups (PAGs) are increasingly recognized for their potential to bridge the gap between families and healthcare providers.
  • Establishing effective communication and collaboration is crucial for managing chronic health conditions in children.
  • Understanding the perceived benefits of PAGs for both parents and professionals is essential for optimizing their impact.

Purpose of the Study:

  • To delineate the advantages of parent advisory group (PAG) participation as perceived by parents and healthcare professionals.
  • To explore how PAGs influence the experiences of families navigating pediatric chronic care.

Main Methods:

  • A retrospective telephone survey was conducted with parents of children with chronic health conditions.

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  • Participants were members of parent advisory groups (PAGs) established in four community-based pediatric practices.
  • Parents and professionals rated the benefits of PAGs using a structured list of potential advantages.

    • Main Results:

    • Parents reported reduced isolation, better understanding of family concerns, increased influence on pediatric care, and improved knowledge of community resources.
    • Professionals noted enhanced awareness of family needs, improved collaboration skills, and a greater sense of effectiveness.
    • A strong interest in continued PAG involvement was expressed by both parents and professionals.

    Conclusions:

    • Parent advisory groups (PAGs) foster collaborative relationships and communication between families and healthcare providers.
    • PAGs enhance social support, increase knowledge of community resources, and bolster families' sense of efficacy in managing their child's care.
    • The findings suggest that PAGs are a valuable tool for improving the care experience for children with chronic conditions and their families.