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Related Experiment Videos

The Eurocleft project 1996-2000: overview.

W C Shaw1, G Semb, P Nelson

  • 1Department of Oral Health and Development, University Dental Hospital of Manchester, UK.

Journal of Cranio-Maxillo-Facial Surgery : Official Publication of the European Association for Cranio-Maxillo-Facial Surgery
|July 24, 2001
PubMed
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The Eurocleft project highlighted significant variations in cleft lip and palate care across Europe. It established standards and guidelines to improve treatment quality and research collaboration for better patient outcomes.

Area of Science:

  • Craniofacial anomalies
  • Public health
  • Medical research

Background:

  • The initial Eurocleft project identified substantial disparities in cleft lip and palate (CLP) care outcomes across Europe, motivating a drive for service improvement.
  • Recognizing the potential for European collaboration in clinical trials and intercentre comparisons, the European Commission supported the 'Standards of Care for Cleft Lip and Palate in Europe: Eurocleft' project (1996-2000).

Purpose of the Study:

  • To promote a significant enhancement in the quality of care and research for cleft lip and palate conditions throughout Europe.
  • To establish a framework for standardized care and facilitate collaborative research efforts.

Main Methods:

  • Development of a comprehensive register detailing European CLP services, professionals, teams, and research facilities.

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  • Creation of Policy Statements for clinical practice, Practice Guidelines for minimum care standards, and Documentation recommendations for record-keeping.
  • Initiation of efforts to compare treatment outcomes between European centres.

    • Main Results:

    • A detailed register of European CLP services was compiled, including information on professionals, teams, and research infrastructure.
    • Common Policy Statements, Practice Guidelines, and Documentation recommendations were established for European CLP teams.
    • A survey revealed considerable diversity in care models, national policies, and clinical practices, with 194 different protocols for unilateral clefts among 201 registered centres.

    Conclusions:

    • Cleft lip and palate services, treatment, and research in Europe have historically developed inconsistently.
    • Achieving even minimal standards of care presents a significant challenge in certain regions, underscoring the need for reform and a clear strategy.
    • The Eurocleft Consensus Recommendations and ongoing collaborative research aim to improve future patient care and advance understanding, treatment, and prevention of CLP.