New programs for children living with life-threatening conditions

Palliative care is not commonly available to most children who die. Some children who die need comprehensive child- and family-centered services for all their lives, or for several years, followed by bereavement care. Other children who die have needs that are emergent, acute, and short term with regard to medical care but very long term with regard to bereavement needs. Exciting new initiatives may soon change the experience of children living with life-threatening conditions and their families.