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Parents call for concerned and collaborative care.
1Jewish Hospital College of Nursing and Allied Health, St. Louis, MO, USA.
Western Journal of Nursing Research
|August 22, 2001
Summary
Parents value concerned and collaborative care from healthcare teams during pediatric lung transplants. Continuity of care and feeling like an individual are crucial for positive experiences, impacting patient and family well-being.
Area of Science:
- Pediatric Healthcare
- Transplant Nursing
- Patient-Centered Care
Background:
- Pediatric lung transplantation is a complex process.
- Understanding parental experiences is vital for improving care.
- Parental expectations shape their engagement with healthcare providers.
Purpose of the Study:
- To investigate parents' perceptions and expectations of healthcare providers in pediatric lung transplantation.
- To identify key themes in parental experiences with the healthcare team.
Main Methods:
- Phenomenological approach utilized for in-depth understanding.
- Semi-structured interviews conducted with 15 parents of 12 pediatric lung transplant recipients.
- Thematic analysis to identify recurring patterns and themes.
Main Results:
- Two primary theme clusters emerged: 'concerned care' and 'collaborative care'.
- Concerned care included positive aspects like individual treatment and feeling valued, but also negative experiences of abandonment.
- Collaborative care involved feeling part of the team, contrasted with feeling 'caught in the middle'.
Conclusions:
- Continuity of care is highly valued by parents, aligning with 'concerned care'.
- Humanistic nursing theory provides a framework for understanding and enhancing patient and family experiences.
- Addressing parental needs for both concerned and collaborative care is essential for optimal pediatric lung transplant outcomes.
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