MOSES: an educational program for patients with epilepsy and their relatives.

Area of Science:

• Neurology
• Patient Education
• Epilepsy Management

Background:

• Patient knowledge regarding epilepsy is often insufficient, highlighting a critical need for structured educational interventions.
• Existing routine care lacks comprehensive epilepsy education programs for patients.
• The Modular Service Package Epilepsy (MOSES) initiative addresses this gap in German-speaking regions.

Purpose of the Study:

• To introduce and evaluate the Modular Service Package Epilepsy (MOSES), an educational program for epilepsy patients.
• To enhance patient understanding of epilepsy, boost self-confidence, and promote self-management.
• To support individuals with epilepsy in becoming experts in managing their own health.

Main Methods:

• MOSES is a modular, multidisciplinary group education program for individuals over 16 with any type of epilepsy.
• It includes nine distinct units covering various aspects of epilepsy, from basic knowledge to psychosocial factors.
• The program utilizes a workout manual for patients and a trainer manual, supported by mandatory "train-the-trainer" seminars.

Main Results:

• Approximately 400 patients have participated in MOSES programs across Germany, Switzerland, and Austria.
• The program is adaptable for both inpatient and outpatient settings, including epilepsy centers, clinics, and private practices.
• The efficacy of the MOSES program is currently under evaluation.

Conclusions:

• The MOSES program offers a structured, modular approach to epilepsy education.
• It aims to improve patient outcomes by fostering greater disease understanding and self-efficacy.
• Further evaluation is needed to confirm the program's effectiveness in routine care.