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Capturing quality of life in pediatric orthopaedics: two recent measures compared
M G Vitale1, D E Levy, A J Moskowitz
1International Center for Health Outcomes and Innovation Research, College of Physicians and Surgeons and The Joseph L. Mailman School of Public Health, Columbia University and New York Presbyterian Hospital, New York, USA. mgv16@yahoo.com
Insights
Standardized health status measures are crucial for children with orthopaedic conditions. The Child Health Questionnaire and the AAOS Pediatric Outcomes Data Collection Instrument show promise in assessing pediatric physical and psychosocial health outcomes.
Area of Science:
- Pediatric Orthopaedics
- Health Outcomes Research
- Measurement in Medicine
Background:
- Assessing health status in pediatric orthopaedic patients requires validated instruments.
- Existing measures may not adequately capture the complexities of physical and psychosocial health in this population.
Purpose of the Study:
- To evaluate the validity and utility of the Child Health Questionnaire (CHQ) and the American Academy of Orthopaedic Surgeons Pediatric Outcomes Data Collection Instrument (AAOS PODCI) in a pediatric orthopaedic cohort.
- To determine if these instruments can differentiate health status based on diagnosis and comorbidities.
Main Methods:
- A cross-sectional study involving 242 pediatric patients with diverse orthopaedic diagnoses.
- Assessment of the CHQ and AAOS PODCI for their ability to measure physical and psychosocial health domains.
- Secondary factor analysis to examine the instruments' domain structure and discriminative capacity.
Main Results:
- The CHQ and AAOS PODCI generally performed as intended, despite some ceiling effects in specific domains.
- Factor analysis confirmed that the instruments' domains effectively distinguish between physical and psychosocial health.
- Several domains from both instruments demonstrated the ability to discriminate between different diagnosis groups and patients with varying numbers of comorbidities.
Conclusions:
- The Child Health Questionnaire and the AAOS Pediatric Outcomes Data Collection Instrument show significant promise for assessing health status in children with orthopaedic conditions.
- These validated measures are valuable tools for defining and tracking health outcomes in pediatric orthopaedic populations.
Abstract:
There is a clear need for standardized measures to assess health status that are valid and appropriate to the needs of children with orthopaedic problems. The Child Health Questionnaire and the American Academy of Orthopaedic Surgeons Pediatric Outcomes Data Collection Instrument, two new pediatric health status measures, were assessed for their ability to detect differences in health states in a pediatric orthopaedic population. The instruments have a range of scales designed to measure various aspects of physical and psychosocial health. Two hundred forty-two patients with wide-ranging diagnoses were enrolled in this cross-sectional study. The instruments exhibited ceiling effects in some domains but generally performed as they were intended in this large cohort. Using secondary factor analysis, it was shown that the domains of the instruments appropriately distinguish physical and psychosocial health. Several domains from each instrument discriminated between diagnosis groups and patients with varying numbers of comorbidities. Both of these measures show significant promise and have an important role in helping define the outcomes of children with orthopaedic problems.
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