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From coping with life to coping with death: problematic integration for the seriously ill elderly
S C Hines1, A S Babrow, L Badzek
1Delmarue Foundation, Easton, Maryland 21661, USA. hinesstddfmc.org
Health Communication
|September 12, 2001
Summary
Elderly patients nearing death often experience suffering due to communication failures. Patients seek coping information, not end-of-life treatment choices, leading to flawed end-of-life communication.
Area of Science:
- Gerontology
- Medical Communication
- Health Psychology
Background:
- End-of-life decisions for elderly patients can lead to suffering and dependence.
- Problematic integration theory offers insights into communication failures in patient care.
Purpose of the Study:
- To explore communication challenges between elderly dialysis patients and nurses regarding end-of-life care.
- To understand how patients and nurses reconcile differing judgments about treatment.
Main Methods:
- Qualitative analysis of open-ended responses from 142 elderly dialysis patients.
- Quantitative analysis of mailed surveys from 393 dialysis unit nurses.
Main Results:
- Patients prioritize information for coping with dialysis over information for end-of-life treatment decisions.
- A key communication gap exists between patients' desire for coping information and nurses' focus on treatment choices.
Conclusions:
- Flawed communication regarding end-of-life issues stems from a tension between coping and decision-making information needs.
- Recommendations are proposed to ease this tension, improving patient preparedness for end-of-life transitions.
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