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Chronic illness: reflections on a community-based action research programme.

T Koch1, D Kralik

  • 1Flinders University, Adelaide, South Australia, Australia. koch.tina@rdns.sa.gov.au

Journal of Advanced Nursing
|September 14, 2001
PubMed
Summary
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Participatory action research (PAR) empowers individuals with chronic illnesses to share their stories, fostering self-management and potentially leading to significant life transitions. This approach highlights the value of narrative in navigating long-term health conditions.

Area of Science:

  • Community health nursing
  • Chronic illness management
  • Participatory action research (PAR)

Background:

  • Community nursing services support a high proportion of clients living with chronic conditions.
  • Research interest focuses on enhancing the quality of life for individuals with chronic illnesses.
  • The study applies participatory action research (PAR) principles with diverse chronic illness groups.

Purpose of the Study:

  • To describe the establishment of a research culture within a community nursing service.
  • To detail the development and implementation of an action research program.
  • To understand the lived experiences of individuals managing chronic illness.

Main Methods:

  • Utilized participatory action research (PAR), emphasizing democratic and collaborative inquiry.

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  • Employed a cyclical process of 'look, think, act' to facilitate participant reflection and action.
  • Convened eight PAR groups involving individuals with chronic illnesses, including multiple sclerosis and type 2 diabetes.

    • Main Results:

    • Facilitator skill in managing group dynamics is critical for project success.
    • Individual-level changes include improved self-management of chronic illness.
    • Collective action can lead to broader reform strategies.
    • Individuals with chronic illness undergo a transition process, incorporating illness into their lives, with storytelling serving as a validating and potentially transformative experience.

    Conclusions:

    • Understanding the process of illness incorporation aids healthcare professionals.
    • This understanding can significantly enhance chronic disease self-care management.
    • Storytelling within a supportive research environment validates participants' experiences.