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Published on: February 11, 2017
Psychosocial aspects of pediatric rheumatic diseases
1Behavioral Sciences Division, University of Kansas Medical Center, Department of Pediatrics, Kansas City, Kansas 66160-7330, USA. mrapoff@kumc.edu
Insights
Pediatric rheumatic diseases create significant psychosocial challenges for children and families, including coping with symptoms, treatment adherence, and chronic pain. More research is needed to understand and address these complex needs.
Area of Science:
- Pediatric Rheumatology
- Psychosocial Health
- Child Health
Background:
- Pediatric rheumatic diseases pose substantial psychosocial challenges for affected children and their families.
- Key challenges include adapting to disease symptoms, managing complex medical treatments, and coping with chronic pain.
Purpose of the Study:
- To review recent studies on the psychosocial issues faced by children with pediatric rheumatic diseases.
- To identify gaps in empirical research and highlight the need for further investigation.
Main Methods:
- Literature review of recent studies focusing on psychosocial aspects of pediatric rheumatic diseases.
- Analysis of identified studies to synthesize findings on patient and family challenges.
Main Results:
- A significant lack of empirical studies addressing the psychosocial needs of children with rheumatic diseases was identified.
- Commonly reported challenges include disease adjustment, treatment adherence, and chronic pain management.
Conclusions:
- There is a critical need for more multisite collaborative studies to comprehensively address the psychosocial needs of children and families impacted by rheumatic diseases.
- Future research should focus on developing and evaluating interventions to support these vulnerable populations.
Abstract:
Pediatric rheumatic diseases present psychosocial challenges for patients and their families. These include (1) adjusting and coping with disease symptoms and limitations; (2) adhering to complex and demanding medical regimens; and (3) coping with chronic pain. This article reviews recent studies on these psychosocial issues for children with pediatric rheumatic diseases. There is a paucity of empirical studies addressing these issues and a clear need for multisite collaborative studies to address the psychosocial needs of patients and families.
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