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The Cancer Informatics Infrastructure (CII): an architecture for translating clinical research into patient care
J S Silva1, M J Ball, J V Douglas
1Office of Informatics, National Cancer Institute, Bethesda, MD, USA. Jc-silva-md@worldnet.att.net
Studies in Health Technology and Informatics
|October 18, 2001
Summary
The Cancer Informatics Infrastructure (CII) aims to modernize slow, paper-based clinical trials. This initiative will foster standards and leverage internet technologies to improve cancer research and care across the continuum.
Area of Science:
- Biomedical Informatics
- Cancer Research Informatics
Background:
- Clinical trials are hindered by slow, paper-based processes.
- A need exists for an integrated informatics infrastructure in cancer research and care.
Purpose of the Study:
- To outline the development and implementation of a Cancer Informatics Infrastructure (CII).
- To identify near-term activities for the National Cancer Institute (NCI) Office of Informatics.
Main Methods:
- Leveraging mainstream informatics and internet technologies.
- Adopting an internet model focused on stakeholder participation and sponsorship.
- Establishing a test bed and infrastructure for CII.
Main Results:
- Recommendations for near-term activities include standards development and fostering oncology terminology (e.g., Common Data Elements).
- Strategic diffusion tactics are proposed to extend CII adoption beyond early adopters.
Conclusions:
- The CII provides a foundational architecture for advancing cancer research and clinical care.
- Strategic planning and leveraging existing technologies are key to successful CII implementation and diffusion.