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Related Experiment Videos

[Genetic counseling versus genetic self testing: what challenges?].

Y Englert1

  • 1Clinique de Fertilité, Service de Gynécologie-Obstétrique, Hôpital Erasme, U.L.B.

Revue Medicale De Bruxelles
|October 30, 2001
PubMed
Summary

Direct-to-consumer genetic self-tests offer extensive personal genetic information but bypass crucial medical supervision. This commercial trend poses emotional and social risks, necessitating ethical considerations.

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Area of Science:

  • Genetics
  • Bioethics

Context:

  • Advancements in molecular genetics provide unprecedented access to personal genetic code.
  • This has spurred the growth of predictive and preclinical medicine.

Purpose:

  • To analyze the ethical, social, and commercial implications of genetic self-tests.
  • To highlight the risks associated with bypassing medical supervision for genetic testing.

Summary:

  • Genetic self-tests provide direct access to genetic information, bypassing the established "genetic council" model.
  • While offering information, these tests pose emotional and social threats, including issues with insurance and employment.
  • The primary driver for genetic self-testing is commercial, not patient welfare.

Impact:

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  • Underscores the need for ethical, deontological, and social frameworks to govern genetic self-testing.
  • Warns against "genetic shopping" and emphasizes patient protection in the face of commercial interests.