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Experiencing personality disorder: a participative research.
S Ramon1, H Castillo, N Morant
1School of Community Health and Social Studies Anglia Polytechnic University, Cambridge.
The International Journal of Social Psychiatry
|November 6, 2001
Summary
This study explored the impact of a Personality Disorder diagnosis from the perspective of individuals with the diagnosis. Findings reveal a predominantly negative impact and a disconnect between user and professional views on the diagnosis.
Area of Science:
- Psychiatry
- Clinical Psychology
- Social Science
Background:
- Personality Disorder diagnoses are debated in public and professional spheres.
- Understanding the lived experience of individuals with this diagnosis is crucial.
Purpose of the Study:
- To explore the views of individuals diagnosed with Personality Disorder.
- To understand the meaning, impact, and support needs related to the diagnosis from a user perspective.
Main Methods:
- In-depth interviews were conducted with fifty individuals diagnosed with Personality Disorder.
- Interviewers were also individuals with the same diagnosis, trained for the study.
Main Results:
- The diagnosis label predominantly had a negative impact on individuals.
- A significant gap exists between users' perceptions of their challenges and professional perspectives.
- The study explored demographic data, diagnosis type, discovery of diagnosis, impact, life events, and support value.
Conclusions:
- The findings raise questions about the validity and usefulness of the Personality Disorder diagnosis.
- Engaging service users in research on Personality Disorder is feasible and valuable.
- The study highlights the need to consider user perspectives in clinical practice and diagnostic validity.