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Identification of family variables in parents' groups of children with epilepsy
1Departamento de Neurologia, Faculdade de Ciências Médicas, Universidade Estadual de Campinas, Campinas, SP, Brasil. paulatfb@terra.com.br
Insights
Support groups effectively address parental fears and misconceptions about childhood epilepsy. This intervention improved family dynamics and care for children with epilepsy.
Area of Science:
- Pediatric Neurology
- Family Psychology
Background:
- Epilepsy in children presents unique challenges for families.
- Parental beliefs and behaviors significantly impact a child's epilepsy management.
Purpose of the Study:
- To assess the efficacy of a support group intervention.
- To identify family variables associated with childhood epilepsy.
Main Methods:
- 21 parents of children with recently diagnosed benign epilepsy participated.
- Pre- and post-intervention tests were administered.
- Intervention included an educational video and group discussions.
Main Results:
- Initial beliefs included fear of seizures and future mental illness.
- Parents reported reduced doubts and improved relationships post-intervention.
- Significant reduction in overprotection and expectation of future seizures observed.
Conclusions:
- Support groups demystify epilepsy, positively influencing family dynamics.
- Intervention prevented maladaptive behaviors and improved child care.
- Group support is crucial for families managing childhood epilepsy.
Objective:
To verify the effectiveness of the support group in the identification of family variables linked to epilepsy.
Method:
Pre-test were applied to parents of 21 children with benign epilepsy of childhood recently diagnosed, from 5 to 15 years, who participated in the groups at HC/Unicamp. There was a presentation of an educational video, discussion and application of the post-test 1. After six months, the post-test 2 was applied.
Results:
The beliefs were: fear of swallowing the tongue during the seizures (76.19%) and of a future mental disease (66.67%). Facing the epilepsy, fear and sadness appeared. 76.19% of the parents presented overprotection and 90.48%, expected a new seizure. In the post-test 1, the parents affirmed that the information offered had modified the beliefs. In the post-test 2, 80.95% didn't report great doubts about epilepsy and 90.48% considered their relationship with their children better.
Conclusions:
The demystification of beliefs supplied from the groups influenced the family positively, prevented behavior alterations and guaranteed effective care in the attendance to the child with epilepsy.
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