Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Experiment Videos

The ethics of preadoption genetic testing.

L A Jansen1, L F Ross

  • 1John J. Conley Department of Ethics, Saint Vincent's Hospital/Medical Center, 153 West 11th Street, New York, NY 10011, USA. Ljansen@saintvincentsnyc.org

American Journal of Medical Genetics
|December 26, 2001
PubMed
Summary

Genetic testing for children offers new possibilities but raises ethical concerns, especially for adoption. Current guidelines may need revision to better address the unique ethical responsibilities in preadoption genetic testing.

Related Concept Videos

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

SU-E-E-03: Ethics and Professionalism Education in Medical Physics: A Needs Assessment Study.

Medical physics·2017
Same author

Breast size and breast cancer: a systematic review.

Journal of plastic, reconstructive & aesthetic surgery : JPRAS·2014
Same author

When the living and the deceased cannot agree on organ donation: a survey of US organ procurement organizations (OPOs).

American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons·2013
Same author

A K-nearest neighbors survival probability prediction method.

Statistics in medicine·2013
Same author

Equal Opportunity Supplemented by Fair Innings: equity and efficiency in allocating deceased donor kidneys.

American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons·2012
Same author

The role of calcium in the tumor promoter-induced inhibition of gap junctional intercellular communication.

Environmental toxicology and pharmacology·2011

Area of Science:

  • Medical Genetics
  • Bioethics
  • Pediatric Health

Background:

  • Advances in genetic technologies enable comprehensive genetic disorder testing in children.
  • The ethical implications of genetic testing, particularly in the preadoption context, require careful consideration.
  • Existing guidelines from the American College of Medical Genetics and The American Society of Human Genetics address pediatric genetic testing.

Purpose of the Study:

  • To examine the ethical permissibility of pediatric genetic testing based on current consensus views.
  • To evaluate whether existing guidelines adequately address the unique ethical responsibilities in preadoption genetic testing.
  • To advocate for revising current standards to permit expanded preadoption genetic testing.

Main Methods:

Related Experiment Videos

  • Analysis of the current consensus on pediatric genetic testing.
  • Examination of ethical responsibilities specific to the preadoption context.
  • Argumentative review of existing ethical standards for genetic testing.

    • Main Results:

    • The current consensus view on pediatric genetic testing may not fully encompass the distinct ethical considerations in preadoption scenarios.
    • Special ethical responsibilities are identified within the preadoption genetic testing context.
    • These identified responsibilities suggest a need for revising current recommendations.

    Conclusions:

    • Current standards for preadoption genetic testing should be revised.
    • Expanded preadoption genetic testing is ethically justifiable when considering unique responsibilities.
    • Revisions can lead to more comprehensive genetic screening for children awaiting adoption.