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Related Experiment Videos

Facilitating informed choice in prenatal testing: how well are we doing?

T M Marteau1, E Dormandy

  • 1Psychology and Genetics Research Group, King's College, London, UK. theresa.marteau@kcl.ac.uk

American Journal of Medical Genetics
|January 10, 2002
PubMed
Summary

Ensuring informed choices in prenatal testing requires high-quality information and support for women. Future research should focus on optimizing service delivery and counseling for decisions after fetal abnormality diagnoses.

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Area of Science:

  • Reproductive Health
  • Medical Ethics
  • Health Services Research

Background:

  • Prenatal testing services aim to support women in making informed choices.
  • Current research primarily addresses pre-test decision-making, often revealing inadequate information quality.
  • Limited research exists on post-diagnosis support and decision-making after fetal abnormalities are identified.

Purpose of the Study:

  • To identify key areas for improving prenatal testing services to facilitate informed choices.
  • To explore optimal methods for providing information and support throughout the prenatal testing process.
  • To develop evidence-based quality standards for prenatal testing information and support.

Main Methods:

  • Literature review and synthesis of existing research on prenatal testing decision-making.
Keywords:
Genetics and Reproduction

Related Experiment Videos

  • Identification of research gaps in information provision and support, particularly post-diagnosis.
  • Conceptual framework development for enhancing informed choice in prenatal testing.

    • Main Results:

    • Information quality regarding test conditions, characteristics, and implications is often poor.
    • Significant gaps exist in understanding how to best support women after a fetal abnormality diagnosis.
    • Optimal service organization, information framing, delivery media, and counseling are critical for informed choices.

    Conclusions:

    • There is a consensus on the need for improved information and support in prenatal testing.
    • Further research is crucial to establish evidence-based standards for all stages of prenatal testing.
    • Valuing women's informed choice necessitates developing quality standards comparable to laboratory test reliability.