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Related Experiment Videos

Patient information booklets for Asian patients with ulcerative colitis.

S P Conroy1, J F Mayberry

  • 1The Gastrointestinal Research Unit, Leicester General Hospital, Leicester, United Kingdom. spcon@msn.com

Public Health
|January 10, 2002
PubMed
Summary
This summary is machine-generated.

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Translated ulcerative colitis (UC) information leaflets were useful for Asian ethnic minorities in Leicester. While generally well-received, patients desired more detail and better doctor support for language barriers, with mixed anxiety results.

Area of Science:

  • Health Services Research
  • Patient Information Dissemination
  • Minority Health

Background:

  • Ulcerative colitis (UC) disproportionately affects ethnic minority populations.
  • Information accessibility remains a challenge for non-English speaking UC patients.
  • Existing health information may not meet the specific needs of diverse patient groups.

Purpose of the Study:

  • To assess the information needs of ulcerative colitis patients from Asian ethnic minorities in Leicester.
  • To evaluate the utility of translated information leaflets (English, Hindi, Gujarati, Punjabi) for this population.
  • To identify barriers and facilitators in accessing UC information.

Main Methods:

  • A postal survey was used to determine initial demand for translated leaflets.

Related Experiment Videos

  • Follow-up questionnaires were administered via post and telephone.
  • Patient feedback on leaflet usefulness, anxiety levels, and information sufficiency was collected.

    • Main Results:

    • All patients found the translated leaflets useful, though doctors' support for language issues was deemed insufficient.
    • Sixty-six percent reported reduced or unchanged anxiety, while 33% experienced increased anxiety after reading leaflets.
    • Nearly two-thirds felt information was insufficient or only satisfactory; response rate was 53%.

    Conclusions:

    • Translated UC leaflets are generally well-received by Asian ethnic minority patients.
    • Increased detail in leaflets may reduce patient anxiety.
    • Low response rates underscore communication difficulties and the need for enhanced resources for this demographic.