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Phantom bladder sensations: a new concern for stoma care workers
1School of Nursing and Midwifery, University of Wales, Cardiff.
British Journal of Nursing (Mark Allen Publishing)
|February 8, 2002
Summary
Phantom bladder pain and sensations are often overlooked after cystectomy. This study highlights the need for stoma care professionals to acknowledge and manage these post-surgical experiences to improve patient quality of life.
Area of Science:
- Urology
- Pain Management
- Psychosomatic Medicine
Background:
- Phantom limb pain is recognized, but phantom sensations in visceral organs, particularly the bladder, are under-documented.
- Prevalence and patient experiences of phantom bladder pain post-cystectomy require further investigation.
Purpose of the Study:
- To explore the experiences of phantom bladder pain and sensations in individuals who have undergone cystectomy or urinary diversion.
- To identify patient-reported strategies for managing these sensations and to highlight healthcare needs.
Main Methods:
- A survey was conducted with 50 individuals who had undergone cystectomy or urinary diversion and reported experiencing phantom bladder sensations.
- Data collected included frequency of sensations, healthcare professional responses, and self-management strategies.
Main Results:
- Respondents described phantom bladder sensations as a continuation of pre-surgery pain and sensations.
- A significant portion reported unhelpful responses from healthcare professionals.
- Various successful self-management strategies were identified.
Conclusions:
- Phantom bladder sensations represent a significant, under-addressed issue for stoma care patients.
- Stoma care professionals should incorporate discussion of phantom bladder sensations into preoperative counseling and provide postoperative support.
- Validating patient experiences and utilizing effective interventions can improve quality of life for stoma care patients.