Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Experiment Videos

Population genetics and benefit sharing.

B M Knoppers1

  • 1Universite de Montreal, Centre de recherche en droit public, CP 6128, Succursale A, Montreal, Que. H3C3J6, Canada. knoppers@droit.umontreal.ca

Community Genetics
|March 7, 2002
PubMed
Summary
This summary is machine-generated.

Related Concept Videos

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

HostSeq: a Canadian whole genome sequencing and clinical data resource.

BMC genomic data·2023
Same author

Navigating the ethical maze of genomics in Canada's military.

BMJ military health·2021
Same author

Autologous bilayered self-assembled skin substitutes (SASSs) as permanent grafts: a case series of 14 severely burned patients indicating clinical effectiveness.

European cells & materials·2018
Same author

Introduction: the why and whither of genomic data sharing.

Human genetics·2018
Same author

Points to consider for laboratories reporting results from diagnostic genomic sequencing.

European journal of human genetics : EJHG·2017
Same author

Towards a global cancer knowledge network: dissecting the current international cancer genomic sequencing landscape.

Annals of oncology : official journal of the European Society for Medical Oncology·2017
Same journal

Does offering prenatal screening influence pregnant women's attitudes regarding prenatal testing?

Community genetics·2008
Same journal

Costs and effects of prenatal screening methods for Down syndrome and neural tube defects.

Community genetics·2008
Same journal

Family physicians' beliefs about genetic contributions to racial/ethnic and gender differences in health and clinical decision-making.

Community genetics·2008
Same journal

Healthy choices through family history: a community approach to family history awareness.

Community genetics·2008
Same journal

Population estimates of extended family structure and size.

Community genetics·2008
Same journal

A community genetics perspective on consanguineous marriage.

Community genetics·2008
See all related articles

The Human Genome Organisation

Area of Science:

  • Genomics Ethics
  • Bioethics
  • Human Genetics Research

Background:

  • International guidelines often focus on clinical genetics applications.
  • The Human Genome Organisation (HUGO) Ethics Committee guides fundamental genomics research.
  • HUGO supports global collaboration for the Human Genome Project (HGP).

Purpose of the Study:

  • To provide ethical guidance for bench scientists in genomics research.
  • To address social, legal, and ethical issues in the Genome Initiative.
  • To review benefit-sharing principles in genetic research.

Main Methods:

  • Review of HUGO Ethics Committee statements and activities.
  • Analysis of ethical considerations in genetic research, cloning, and patenting.
Keywords:
Genetics and Reproduction

Related Experiment Videos

  • Examination of benefit-sharing issues, including community, heritage, and justice.

    • Main Results:

    • HUGO's Ethics Committee has issued statements on genetic research, cloning, and benefit-sharing.
    • The Intellectual Property Committee addresses patenting controversies.
    • Key issues include avoiding commodification of DNA and biopiracy.

    Conclusions:

    • Benefit-sharing requires careful consideration of community, common heritage, distributive justice, and solidarity.
    • Ethical frameworks are crucial for fundamental genomics research.
    • Balancing intellectual property rights with equitable benefit-sharing remains a challenge.